Director, Patient Advocacy

Why Sarepta? Why Now? The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne.  We’re looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients. What Sarepta Offers At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas: Physical and Emotional Wellness ​Financial Wellness Support for Caregivers   For a full list of our comprehensive benefits, see our website: https://www.sarepta.com/join-us   The Importance of the Role The Importance of the Role The Director, Patient Advocacy serves as a strategic leader within the Patient Affairs organization, responsible for shaping and advancing advocacy strategies that deepen Sarepta’s partnerships with patient communities and integrate patient perspectives across Sarepta’s business and development priorities. Reporting to the Senior Director, Patient Advocacy, this leader will drive high impact collaborations with patient advocacy organizations and global patient community engagement. This role is critical to ensuring patient and caregiver perspectives are incorporated into cross-functional planning and decision-making across the product lifecycle, spanning research and development to commercialization. The Director will serve as both an internal strategist and external relationship leader, helping Sarepta deliver on its mission through authentic community partnership, insight-driven action, and patient-centered leadership. The Opportunity to Make a Difference The Opportunity to Make a Difference Primary Responsibilities Strategic Leadership: Lead the development and execution of Sarepta’s patient advocacy strategy, ensuring alignment with enterprise priorities, community needs, and the company’s commitment to patients and caregivers. Community Engagement: Build, strengthen, and sustain trusted strategic partnerships with patient advocacy organizations, community leaders, and other key stakeholders to advance shared goals and reinforce Sarepta’s connection to the communities it serves. Cross-Functional Collaboration: Serve as a strategic advisor to internal cross-functional teams, ensuring patient and caregiver perspectives are incorporated into planning, decision-making, and the organization’s priorities. Patient Insights and Strategy: Identify, synthesize, and translate patient and caregiver insights into actionable recommendations that inform business decisions, development programs and patient-centered initiatives. Capacity Building: Identify and foster opportunities for meaningful collaboration with patient organizations that advance community priorities and organizational objectives.  Compliance & Ethics: Ensure all interactions with patients, caregivers, and advocates adhere to internal and external compliance requirements Industry Awareness: Monitor the evolving healthcare, advocacy, and rare disease landscapes to identify emerging trends, stakeholder needs, and opportunities that inform business strategy. More about You More about You Bachelor’s degree or above in life sciences, public health, healthcare, communications, or a related field; advanced degree preferred. 12+ years of progressive experience in healthcare, biotechnology, pharmaceuticals, patient advocacy, public affairs